Thursday, May 8, 2025

Part 2 From routine checkup to diagnosis


I let myself cried that day after receiving the dreaded news. The part that broke my heart into pieces was when Kassandra asked “Mom, are you going to die?” This was the moment when I held my child tight and assured her that mommy will fight to live. Kassandra does not know about cancer until she heard about my sister Clarice… and the only concept that she has of it is linked with death because of what happened to her aunt. So it was devastating, as a mother, to hear about her fear that I could die. It is at that moment of vulnerability that I told myself, I have to be strong for her. I have to compose myself and not show her that I am terrified inside. You know when you are going through so much emotions deep inside but you have to push and buried it away so your child will not see you in that state of weakness? – that is what I did. The next day, I went back to work. I have to make all administrative work in order and make all my backlogs of prescription and PT notes up to date among other things. I also already filed for leave for the week after because I am scheduled for a genetic screening and appointment with the breast clinic nurse.

 

April 14 was the first time I had a meeting with Marie, the breast clinic nurse. A very empathic, soft-spoken lady. She must have done this a million times already because she was so calm and reassuring in answering all the questions I threw on her. She then again explained to me that because my cancer is at stage 0 — abnormal cells were found in the lining of the breast milk duct but has not YET spread into the surrounding breast tissue — I don’t need radiation or chemotherapy after the surgery, which actually a good news. I then asked “why so drastic the treatment when the cancer cells has not even invaded the surrounding tissue?” She then went on explaining that although it is non-invasive now, if not treated, might evolve into the invasive type. And according to the biopsy report, what I have is a high grade type DCIS with possible micro-invasion and with an extensive zone of 5.5 cm in MRI. And the best treatment for it is to remove the left breast totally. At that point, I just cannot control my emotions anymore and cried my heart out. . An overwhelming feeling of helplessness just came over me. I must have looked so torn and lost that I heard her already on the other line arranging for a psychological appointment for me. That day, I also needed to have my blood extracted for the genetic screening so I was ushered to the laboratory as well.

                                                       Info brochures handed to me to read

 

April 16 was my first appointment with the psychologist, Hanan. My session with her was supposedly just for an hour but it went on for almost 2 hours because half of the time I was just bawling and weeping. It was clear in that session that I was still grieving for the loss of my sister, and grieving now for the uncertainty of my situation. It was during that session that the emotion of so much grief just came out of the surface.


April 18 – Patrick accompanied me with my appointment with the plastic surgeon. The first thing I noticed when we went in his office was all the certificates and achievements hanging on his wall. I don’t know if it is supposed to assure me that he is one of the best surgeons in the country because it was more intimidating to me. He has this aura of “I have done this for so many times and I know what I’m doing” kind of vibe.  Very professional and a matter-of-factly kind of way in explaining to me the different breast reconstruction procedures and the pros and cons of each. You know that very smart and meticulous kind of doctor like Dr. Cristina Yang (of Grey’s anatomy). I also did my research before coming to this meeting, so hearing the explanation of the expert only strengthen my decision on choosing the DIEP flap surgery.  

 A very long hallway going to plastic surgery department

 

April 23 – Another psychotherapy session and this time the emotion that came out was deep-seated guilt, hopelessness and despair. It was a roller coaster of emotions! I find this session so emotionally exhausting because I didn’t know I have those emotions buried inside me. Guilt that I was not able to come home to say my last goodbye to my sister. Guilt that I was not physically present to support her emotionally when she was going through so much pain and suffering. It was a session of dark emotions – I was angry and blaming myself for everything that’s happening to me. This is the side of me I didn’t know existed and I barely recognized myself during that session.

 My once a week session since my diagnosis 

April 24 – Another meeting with the onco team to discuss changes in the treatment plan. Due to the family history of an aggressive cancer I was advised to wait for the result of the genetic testing. They have to rule out genetic factor as it can affect the course of treatment. If genetic screening turns out to be positive then a double mastectomy is highly advisable. And because I chose autologous breast reconstruction, waiting for the result of the genetic test is the most logical thing to do if in case double mastectomy should be performed. The tentative date of surgery of May 5 was then postponed for further advice. My mind was at that moment in panic mode. How long should we wait? What if the cancer cells spread? I was then reassured that they already ordered to expedite the genetic screening so results will be in 2 to 4 weeks. I went home not feeling reassured at all…

April 29 – Got a call from the breast clinic nurse for an appointment with the surgeon as the genetic test result was received and it was in my favor.. I have an appointment on May 5 to finalize the schedule for surgery.

April 30 – Maybe because of the good result of the genetic test, I felt so relieved like a big chunk of burden on my shoulders was pulled out. The session with my psychologist that day was a little bit lighter. Coming home, I felt more hopeful..

May 5 – At the multidisciplinary onco consult, the surgery is scheduled on May 22. I will be admitted on May 21 for preop preparations. I was also scheduled for a CT scan of the abdomen on May 7. This is needed for the DIEP flap surgery.

To be continued…